2015

Petition: Protest the high cost of cancer drugs to patients

Drugs for cancer care have become astronomically high, forcing many patients to do without. While the cost of cancer medications is increasing at an alarming rate, overall household incomes are down about 8% from a decade ago. Even patients with health insurance are seeing 20-25% out of pocket expenses for their care. This has to stop. Please consider signing this petition, which will be sent to the, Secretary of Health and

Keeping track of your health just got easier!

The Carcinoid Cancer Foundation is pleased to announce that a new unique tool for carcinoid/NETs patients and their caregivers is now available! The Carcinoid NETs self-care tool, powered by Health Storylines™ allows you to track your mood, symptoms, and more, on the same timeline as your treatment. The Carcinoid NETs app makes sure you have an accurate, shareable record of your experience between physician visits, and helps you and your

2015 MINNEAPOLIS NET CANCER PATIENT CONFERENCE 

Led by nationally renowned NET cancer physician specialists, this program will help patients be their own advocates and flow current data and information to the medical community. The topics covered during the conference are critical to the diagnosis, treatment and overall welfare of NET patients. Plenty of Q & A time is provided. The $25 registration fee includes a full day of world class presentations, continental breakfast, lunch and coffee breaks. Click here

Natural History of Familial Carcinoid - Clinical Trial

We have a few patients in our group that have strong connections with carcinoid in their family. A new study at NIH has opened and we strongly encourage those affected to look into this. I have cut and paste an email that we received from Jenny Pettit about this study: Greetings, Myself and my Aunt (deceased) have been diagnosed with Familial Midgut Carcinoid/NETS.  As I feel it is curse (due