NET Cancer Awareness Day 2017

Northwoods NETS is pleased to announce that Senator Mark Dayton has proclaimed Friday, November 10th, NET Cancer Awareness Day in the state of Minnesota. We thank Governor Dayton for his continued recognition of this unusual cancer. It is estimated that approximately 300 Minnesotans are diagnosed with each year with this poorly understood disease. NETS, also known as neuroendocrine tumors, are considered rare tumors that have either benign or malignant behaviors.

NET Cancer Day is coming soon!

We are about a month away from NET Cancer Day, an international awareness day to help shine a light on neuroendocrine cancers. There are many ways you can help to make an impact on this upcoming NET Cancer Day: Talk to your friends and family about your disease Host an event in your neighborhood – a walk, dinner or a vigil Share NET Cancer Day events and ribbons on your social

Part Twelve: Where PRRT & Me part ways

In August, I went to see my specialist in Iowa City and was presented with terrible news. The lesions in my liver went to 5% tumor burden in January 2017 to 30% tumor burden in August 2017. PRRT was completely ineffective for me. (Or maybe it was effective and the results could have been worse.) But, my tumor activity was never this active prior to treatment. Doctor O’Dorisio told me

FDA: Lutathera Action Date Set for Late January 2018

Advanced Accelerator Applications S.A. (AAA) has announced that the Food and Drug Administration (FDA), in the United States, has accepted and considered complete the resubmission of the New Drug Application (NDA) for its investigational drug lutetium Lu 177 dotatate (Lutathera).  Lutathera is the brand name for the radiologic used in Peptide Receptor Radionuclide Therapy (PRRT). The FDA has set an action date of Jan 26, 2018. AAA is attempting to obtain U.S.

Worldwide NET Cancer Day

Recently, while aimlessly browsing on the Internet, I discovered a website that was trying to encourage Google to make November 10th a Google Doodle to help raise awareness of NET Cancer Day. I don’t recall that happening, ever. I figure it’s August, so, now is the time to start getting these types of requests in place. Below, see my sample email that I sent to proposals@google.com to suggest November 10th as NET