About Us

Formed in 1999, Northwoods NETS is a patient support and advocacy group for those living with neuroendocrine tumor cancers including Carcinoid, Islet Cell, and MEN-1. While based in the Twin Cities, Northwoods NETS provides support, information, and awareness for patients and caregivers all over Minnesota, North and South Dakota and western Wisconsin.

We currently meet monthly via Zoom every third Sunday in a month. See our events sidebar with a list of current dates.

Northwoods NETS is Non-Profit Organization in the State of Minnesota with 501(c)3 status. Our EIN is: 81-3893802.

You might be asking yourself, “what’s up with the zebras?” Neuroendocrine cancers are very rare, affecting only a small percentage of the population. Doctors, when training in medical schools, are taught “when you hear hoofbeats, think horses, not zebras.” Neuroendocrine cancers are zebras. Remember, no two zebras are identical, like snowflakes.