Carcinoid Syndrome Impact Survey


We are excited to participate in the Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patient lives, while also exploring physicians’ approaches to treating the disease. This survey is groundbreaking in that it brings together the collective efforts of leading national and regional patient advocacy groups:

  • Carcinoid Cancer Foundation (CCF)
  • Neuroendocrine Cancer Awareness Network (NCAN)
  • Neuroendocrine Tumor Research Foundation (NETRF)
  • The Healing NET Foundation
  • Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)
  • NorCal CarciNET Community
  • Big Apple NETs

 By working together, it is our collective hope to shine a much needed spotlight on the detrimental effects that carcinoid syndrome has on patient lives, while raising awareness and understanding in the physician communities of this disease.

Most importantly, we are extremely grateful to you for investing your time to participate, because in sharing your individual and personal experiences with the disease, you are helping to elevate both understanding and awareness about what it’s like to live with carcinoid syndrome.  We are gratified to see the increase in the level of attention now being focused on carcinoid syndrome and we encourage you to add your voice in building the body of knowledge to help impact patient care.

This survey is being conducted through the sponsorship of Lexicon Pharmaceuticals and corresponds with the launch of the new carcinoid syndrome patient education site,

Click here to take the survey.

Northwoods NETS
Northwoods NETS