The links below are great places to visit for both the newly diagnosed and the for those wanting to keep up to date on the latest treatments available.
Carcinoid Cancer Foundation
The oldest organization in the U.S. that supports education and research into these rare cancers.
Carcinoid Cancer Awareness Network
Providing support and information for NET cancer patients and caregivers. This group helps to organize educational conferences around the U.S.
A comprehensive information site by Novartis, one of the pharmaceutical companies that makes Sandostatin, a drug that is frequently prescribed to NET patients.
Caring for Carcinoid Foundation
This is an excellent group that supports leading scientists whose research will lead to cures for carcinoid, pancreatic neuroendocrine, and related neuroendocrine cancers.
The NET Alliance
The NET Alliance™ is working to improve outcomes for patients with neuroendocrine tumors (NETs). And they also aim to help healthcare providers advance the diagnosis and management of NETs.
From Wikipedia, this site has a very comprehensive description of the types of neurodendocrine tumors.
The purpose of this newly formed professional organization of medical professionals is to improve neuroendocrine tumor (NET) disease management through increased research and educational opportunities.