Support Groups

ACOR – Carcinoid
This is a very active mailing list that has participation from experts in the treatment of Carcinoid and other Neuroendocrine Cancers.

CNETs Canada – Carcinoid Neuroendocrine Tumor Society of Canada
Hosting a variety of conferences throughout Canada, this is a very pro-active and friendly group. They also have an online mailing list.

Heartland Carcinoid/NETS Support Group
Centered in Missouri, this proactive and caring support group boasts membership from across the U.S.

Lung Carcinoid Support
A great group of mostly lung carcinoid patients (but other foreguts as well) who are here to share information pertaining to foregut carcinoids, including pancreatic, gastric, ovarian, and lung carcinoid cancer.

PNET Support Community
Inspire is a support community that is supported by many groups. It’s a good place to ask questions and connect with other PNET patients.

Smart Patients
A new community created by Carcinoid Cancer Foundation, the oldest neuroendocrine organization in the U.S.

This is not a support group, only an information group. Monitored by NET Specialists also, it is an excellent resource for patients diagnosed with pancreatic neuroendocrine tumors or islet cell carcinomas.

Support Groups Worldwide
The Carcinoid Cancer Foundation is the oldest in the U.S. and maintains a large database of information. They have a very comprehensive list of support groups all over the U.S. and World.