Newly diagnosed

Checklist for the Newly Diagnosed
This is a great list from the Carcinoid Cancer Foundation that all NET & Carcinoid patients need to review.

Neuroendocrine Tumours Reference Guide for Patients and Families
Developed by the Carcinoid Neuroendocrine Tumour Society of Canada, this patient-friendly handbook was developed to provide you with information and support as you confront and adapt to a neuroendocrine tumour (NET) diagnosis

What you need to know about neuroendocrine tumors and carcinoid cancer
A primer written by Dawn Marie of Northwoods NETS.

The Five E’s
Things to be aware of to avoid symptoms of your disease.

What is Carcinoid Syndrome?
Symptoms related to the hormones that neuroendocrine tumors secrete.

What is Carcinoid Crisis?
A serious and sometimes life-threatening condition related to the symptoms of Carcinoid.

Symptoms associated with neuroendocrine tumors that are not carcinoid
If you have been diagnosed with an Islet Cell Tumor or a Pancreatic Neuroendocrine Tumor, these are the hormones your tumors might secrete and the symptoms.

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