The National Comprehensive Cancer Network (NCCN) has recently released a new guideline book for patients diagnosed with neuroendocrine tumors. With very readable language it discusses what neuroendocrine tumors are, how they are diagnosed, the various types of treatments that are available based on the location your neuroendocrine tumor was found, and treatment decisions. Also included in this guide is a dictionary to easily look up terms related to neuroendocrine tumors,
Developed by our friends at the Carcinoid Neuroendocrine Tumour Society Canada group, this patient-friendly handbook was developed to provide you with information and support as you confront and adapt to a neuroendocrine tumour (NET) diagnosis. Visit their site to download your PDF copy of this indispensible handbook.
The links below are great places to visit for both the newly diagnosed and the for those wanting to keep up to date on the latest treatments available. Carcinoid Cancer Foundation The oldest organization in the U.S. that supports education and research into these rare cancers. Carcinoid Cancer Awareness Network Providing support and information for NET cancer patients and caregivers. This group helps to organize educational conferences around the U.S.
Checklist for the Newly Diagnosed This is a great list from the Carcinoid Cancer Foundation that all NET & Carcinoid patients need to review. Neuroendocrine Tumours Reference Guide for Patients and Families Developed by the Carcinoid Neuroendocrine Tumour Society of Canada, this patient-friendly handbook was developed to provide you with information and support as you confront and adapt to a neuroendocrine tumour (NET) diagnosis What you need to know about neuroendocrine tumors