I got my acceptance on April 6th for a treatment date of May 19th, so I had about five weeks to pull it together. I was due for my Sando shot on the 8th of April, but, my oncologist deferred it to make sure that my receptors would be good and thirsty for treatment. I did use subcutaneous octreotide up to three days before treatment. Because I need so much
As a NET Cancer patient for almost nine years, my decision to go to Basel was not a light decision. Cost was really the biggest barrier for me. But, the stark realization that I didn’t really need a 401k if I were dead became very real. I waited almost two years to get into the Y-90 trial at the University of Iowa, where I have been seen as a patient for
Greetings everyone, this is is the first post in a series that I will be blogging at about my PRRT experience in Basel, Switzerland. I am a nine-year pancreatic neuroendocrine cancer survivor and will be undergoing my first treatment with Y-90. If you are curious about my history, please visit my profile page. I update that as I have new treatments. This blog will be specifically about my experience
If you are considering PRRT (Peptide Receptor Radionuclide Therapy) you know that it is still not available in the United States in 2016. We are hopeful that it will pass FDA regulation in 2017, but, even then, it may take six months or more before insurers have the codes and are no longer considering it “investigational.” If you need treatment, do not delay waiting for it’s possible FDA approval. We
Carcinoid-Cancer.com Ed is a blogger who has detailed out his journey with Carcinoid Cancer. He recently underwent three rounds of PRRT at Houston’s MD Anderson. While this treatment is not approved in the US at the time of writing, it is allowable under the “right to try” treatments. He has posted details of his first, second and third treatments. Flush Poop PRRT Polly Newman wrote an excellent and detailed account of
You must be logged in to post a comment.