NCCN Guidelines for NET Patients

The National Comprehensive Cancer Network (NCCN) has recently released a new guideline book for patients  diagnosed with neuroendocrine tumors. With very readable language it discusses what neuroendocrine tumors are, how they are diagnosed, the various types of treatments that are available based on the location your neuroendocrine tumor was found, and treatment decisions. Also included in this guide is a dictionary to easily look up terms related to neuroendocrine tumors,

Video presentations, Symptoms associated with non-carcinoid NETS and Member Profiles

Northwoods NETS has been working hard to make our website an easy-to-navigate and useful starting point for people who have been affected by neuroendocrine cancers. We have added some new areas to the site to help you find more information about this rare disease. Member Profiles These are profiles of some of the members of our group. It’s a nice place to compare your story and to connect with other

For neuroendocrine tumor patients that are not Carcinoid (which means, their tumors secrete serotonin), there are a variations of symptoms based on the types of hormones your tumor can overproduce. Generally speaking, these are tumors that are caused from Pancreatic Neuroendocrine Tumors, also called Islet Cell Tumors but also lung, pituitary and adrenal glands. These are a few of the hormones that they overproduce and the symptoms. Insulinomas These can

Carcinoid Syndrome is caused by carcinoid tumors that most commonly arise in the mucosa of the gastrointestinal tract. Carcinoid syndrome is the set of symptoms that may occur in patients who have carcinoid tumors. Not all people with carcinoid tumors have carcinoid syndrome. The syndrome occurs when carcinoid tumors overproduce substances such as serotonin that normally circulate throughout your body. This overproduction of serotonin and other hormones is what causes the

Carcinoid crisis is the immediate onset of  debilitating and life-threatening symptoms that are associated with carcinoid syndrome. It can occur spontaneously or be precipitated by the Five E’s. Symptoms include prolonged severe flushing, diarrhea, hypotension, tachycardia severe dyspnea, peripheral cyanosis and sometimes hemodynamic instability. Other very serious conditions include: Tahycardia: heart beating to fast Severe Dyspnea: Shortness of breath Peripheral Cyanosis: Lack of oxygen in the blood causing a bluish discoloration of the skin Hemodynamic Instability: Circulatory Shock or Advanced Heart Failure