It’s been a slow, sleepy summer… I’m eight weeks out from round two and happy to report, I am doing well. I won’t lie and say that it’s been all wine and roses the last few weeks. (Mmmm, wine and roses…) I have been *so* tired. The hammer came down during week two and my exhaustion really peaked at week four. It finally started leveling out about week six. I
Woah! I wrote a few weeks ago and I thought I’d have plenty of time to blog before I went to Basel for round two and the time slipped away. I am already done with round two. My treatment date was less than six days ago and I am back home in the United States. I am going to detail out some pre-trip items before I launch into the actual treatment.
As NET patients are well aware, we tend to be quite complicated. It is a wise decision to wear a medical ID alert in the event that you need medical attention and are unable to speak for yourself. If you have carcinoid (or any other kind of NET) with or without syndrome, it is recommended to wear a medical alert bracelet or necklace that states not receive epinephrine, which could
Developed by our friends at the Carcinoid Neuroendocrine Tumour Society Canada group, this patient-friendly handbook was developed to provide you with information and support as you confront and adapt to a neuroendocrine tumour (NET) diagnosis. Visit their site to download your PDF copy of this indispensible handbook.
Living with neuroendocrine cancer is manageable. There are many options for maintaining a wellness plan, here are a few ideas. Special thanks to Heartland Carcinoid/NETs Support Group for their great list, which we have built upon. Exercise: is the single most important activity you can do when you have cancer. There is a lot of research suggesting that exercise can help prevent or slow down the recurrence of your cancer. You don’t have to
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