Summary: Robert Fine, MD, reported at a press conference held in advance of the 2014 Gastrointestinal Cancers Symposium (GICS), that the chemotherapy combination of capecitabine plus temozolomide either stalled disease progression or shrank tumors in 97% of patients whose disease had worsened after standard high-dose octreotide. Read the full story at Medscape. You can sign up for a free account to access the full article.
Neuroendocrine Tumors From the Neuroendocrine Tumor Clinic at the Nebraska Medical Center discusses basic information about neuroendocrine tumors. Nebraska Medical Center’s Neuroendocrine Tumor Program Luce Case talks about the services provided at their multi-disciplinary center. Nutrition Essentials for Neuroendocrine Tumor Patients What to eat and why when living with neuroendocrine tumors. OncLive discusses the treatment regimen of PRRT Doctors Eric Liu, Matthew Kulke and James Yao discuss this important treatment option
The links below are great places to visit for both the newly diagnosed and the for those wanting to keep up to date on the latest treatments available. Carcinoid Cancer Foundation The oldest organization in the U.S. that supports education and research into these rare cancers. Carcinoid Cancer Awareness Network Providing support and information for NET cancer patients and caregivers. This group helps to organize educational conferences around the U.S.
As patients living with neuroendocrine tumors and carcinoid cancers, we have different options to choose from. The pages below explore some of the options we have, living with a rare cancer. Monitoring Disease There are a number of ways that neuroendocrine tumors are monitored through imaging and bloodwork. Standard Treatment Options First line treatment options or standard treatment options for all neuroendocrine cancers including Carcinoid. Complementary Treatment Options These are
Formed in 1999, Northwoods NETS is a patient support and advocacy group for those living with neuroendocrine tumor cancers including Carcinoid, Islet Cell, and MEN-1. While based in the Twin Cities, Northwoods NETS provides support, information, and awareness for patients and caregivers all over Minnesota, North and South Dakota and western Wisconsin. We currently meet monthly via Zoom every third Sunday in a month. See our events sidebar with a list
