The Carcinoid and Neuorendocrine Cancer patients are amazing and proactive. A number of them have blog sites, which are always nice to follow other patients treatment plans. Here are a few that we are aware of. If you know of others, please drop us an email! Beth’s Adventures with Carcinoid CancerAn overview of Beth’s journey dealing with a rare cancer. She was diagnosed in 2010. Channeling Jackie-OMarlena chronicles her day
Neuroendocrine cancer is a rare cancer affecting only 125,000 patients in the United States, about five in 100,000 cases are diagnosed in a year. Neuroendocrine cancer is frequently misdiagnosed as common illnesses such as IBS, Chron’s, asthma and even the effects of menopause. It has the unfortunate legacy of originally being known as a benign “cancer-like” disease because it tends to be slow growing. Patients can go months, or even
Checklist for the Newly Diagnosed This is a great list from the Carcinoid Cancer Foundation that all NET & Carcinoid patients need to review. Neuroendocrine Tumours Reference Guide for Patients and Families Developed by the Carcinoid Neuroendocrine Tumour Society of Canada, this patient-friendly handbook was developed to provide you with information and support as you confront and adapt to a neuroendocrine tumour (NET) diagnosis What you need to know about neuroendocrine tumors
Formed in 1999, Northwoods NETS is a patient support and advocacy group for those living with neuroendocrine tumor cancers including Carcinoid, Islet Cell, and MEN-1. While based in the Twin Cities, Northwoods NETS provides support, information, and awareness for patients and caregivers all over Minnesota, North and South Dakota and western Wisconsin. We currently meet monthly via Zoom every third Sunday in a month. See our events sidebar with a list