As NET patients are well aware, we tend to be quite complicated. It is a wise decision to wear a medical ID alert in the event that you need medical attention and are unable to speak for yourself.
If you have carcinoid (or any other kind of NET) with or without syndrome, it is recommended to wear a medical alert bracelet or necklace that states not receive epinephrine, which could precipitate a carcinoid crisis. Octreotide (Sandostatin) will control carcinoid crisis. Please note, if you have an anaphylactic reaction (eg. bees, nuts, latex, etc.), you cannot avoid the administration of epinephrine, just make sure octreotide is also available, which will help to stabilize carcinoid crisis precipitated by epinephrine.
Here is an example of what you can put on your ID:
No epinephrine or NO EPI
There are a variety of companies that can provide you with medical ID alert jewelry and each allow variations as to how many letters per line, you may have to play around with what fits where and what makes sense with your conditions. Here is a list of some of our favorites companies below:
For a sporty silicone bracelet, dog tag necklace or even tags that can fit on your running shoes, Road ID cannot be beat.
American Medical ID
Featuring gold, silver, and titanium pieces, as well as nifty leather bands, they have a nice selection of traditional medical ID alerts and some funky styles for kids and teens.
This company has very nice specialty medical alert IDs for men, women and children. Beaded pieces, stainless steel, Swarovski crystal, cotton, silicone and more.
Sports bands, shoe tags, watches and dog tags are all available from this source.