Carcinoid crisis is the immediate onset of debilitating and life-threatening symptoms that are associated with carcinoid syndrome. It can occur spontaneously or be precipitated by the Five E’s. Symptoms include prolonged severe flushing, diarrhea, hypotension, tachycardia severe dyspnea, peripheral cyanosis and sometimes hemodynamic instability. Other very serious conditions include: Tahycardia: heart beating to fast Severe Dyspnea: Shortness of breath Peripheral Cyanosis: Lack of oxygen in the blood causing a bluish discoloration of the skin Hemodynamic Instability: Circulatory Shock or Advanced Heart Failure
There are certain activities and situations that can trigger carcinoid syndrome, the worst case scenario being carcinoid crisis. Each person is different and one person’s trigger may not affect another’s. It’s wise to take note if certain foods or activities cause carcinoid symptoms to act up. In some cases it can be a combination of triggers that can cause a reaction. Keep a log book of foods, activities and medications if you
Living with cancer can seem like an overwhelming prospect, but there are many organizations providing services that strive to make your journey easier. Minnesota Specific Resources Cleaning Up for Cancer If you are located in the seven county Metro of Minneapolis-St. Paul, this organization can help. They are supported entirely by corporate and private donations along with grants, currently allowing two cleanings per patient. Pathways Minneapolis Pathways’ mission is to
Living with neuroendocrine cancer Tips for healthy living and well-being with neuroendocrine and carcinoid cancer. Injection sites for short-acting octreotide If you need a bump of short-acting octreotide, outside of your normal Sandostatin LAR shot, this page shows a handy chart to make it easier to rotate your injection sites. Medical ID Bracelets Looking for information about what carcinoid and neuroendocrine (NET) cancer patients should put on their medical ID
As patients living with neuroendocrine tumors and carcinoid cancers, we have different options to choose from. The pages below explore some of the options we have, living with a rare cancer. Monitoring Disease There are a number of ways that neuroendocrine tumors are monitored through imaging and bloodwork. Standard Treatment Options First line treatment options or standard treatment options for all neuroendocrine cancers including Carcinoid. Complementary Treatment Options These are
