While not specifically related to NETS, this Infographic puts the emphasis on rare diseases, which neuroendocrine cancers are classified. Sermo is an online physician social media and networking site. Check out their infographic to remind doctors that sometimes there are zebras amongst those horses.
Zebra Talk is a wonderful, patient-friendly guide on the world of neuroendocrine cancer. Featuring information and tips on navigating this disease from diagnoses to treatments. Below is a note from the editor, Suzi Garber. “This booklet is intended as a reference for those newly diagnosed with NETs, in the process, or hoping to explore this bewildering world. It is also a guide to resources that can empower patients through knowledge
Neuroendocrine tumors have a variety of treatments available. From surgical, radiologic and medical management, there are a number of treatment options. No two patients are exactly alike and throughout the course of the disease, all options should be considered. Here is a brief overview of treatment modalities. SURGICAL OPTIONS Surgery is always the number one treatment of all neuroendocrine tumors including carcinoid if the patient is a surgical candidate. It
[embedplusvideo height=”400″ width=”584″ editlink=”http://bit.ly/Txp2YA” standard=”http://www.youtube.com/v/0YfLOUS61pg?fs=1″ vars=”ytid=0YfLOUS61pg&width=584&height=400&start=&stop=&rs=w&hd=0&autoplay=0&react=1&chapters=¬es=” id=”ep1361″ /] On May 18th, 2014, Nancy Teixeira, administrator from Wren Labs, talked to Northwoods NETS to talk about their unique biomarker that helps detect neuroendocrine cells in the blood sooner than any other biomarker including Chromagranin A (CGA) or pancreastatin. Nancy is both a RN and a Carcinoid patient, so she is very knowledgeable about the disease. Download the Wren Labs Powerpoint Presentation –
Northwoods NETS was extremely lucky to have Dr. Luciano Vargas from the University of Nebraska Medical Center present to us on March 9, 2014. He is part of a multi-disciplinary team that works specifically with patients living with neuroendocrine cancers. At 51:00 My first first camera’s battery died, so it was switched out to a mobile, handheld device. The video and audio quality changes, but it is still okay. Special
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