The Carcinoid and Neuorendocrine Cancer patients are amazing and proactive. A number of them have blog sites, which are always nice to follow other patients treatment plans. Here are a few that we are aware of. If you know of others, please drop us an email! Beth’s Adventures with Carcinoid CancerAn overview of Beth’s journey dealing with a rare cancer. She was diagnosed in 2010. Channeling Jackie-OMarlena chronicles her day
Living with cancer can seem like an overwhelming prospect, but there are many organizations providing services that strive to make your journey easier. Minnesota Specific Resources Cleaning Up for Cancer If you are located in the seven county Metro of Minneapolis-St. Paul, this organization can help. They are supported entirely by corporate and private donations along with grants, currently allowing two cleanings per patient. Pathways Minneapolis Pathways’ mission is to
Living with neuroendocrine cancer Tips for healthy living and well-being with neuroendocrine and carcinoid cancer. Injection sites for short-acting octreotide If you need a bump of short-acting octreotide, outside of your normal Sandostatin LAR shot, this page shows a handy chart to make it easier to rotate your injection sites. Medical ID Bracelets Looking for information about what carcinoid and neuroendocrine (NET) cancer patients should put on their medical ID
Formed in 1999, Northwoods NETS is a patient support and advocacy group for those living with neuroendocrine tumor cancers including Carcinoid, Islet Cell, and MEN-1. While based in the Twin Cities, Northwoods NETS provides support, information, and awareness for patients and caregivers all over Minnesota, North and South Dakota and western Wisconsin. We currently meet monthly via Zoom every third Sunday in a month. See our events sidebar with a list