The Carcinoid and Neuorendocrine Cancer patients are amazing and proactive. A number of them have blog sites, which are always nice to follow other patients treatment plans. Here are a few that we are aware of. If you know of others, please drop us an email! Beth’s Adventures with Carcinoid CancerAn overview of Beth’s journey dealing with a rare cancer. She was diagnosed in 2010. Channeling Jackie-OMarlena chronicles her day
The links below are great places to visit for both the newly diagnosed and the for those wanting to keep up to date on the latest treatments available. Carcinoid Cancer Foundation The oldest organization in the U.S. that supports education and research into these rare cancers. Carcinoid Cancer Awareness Network Providing support and information for NET cancer patients and caregivers. This group helps to organize educational conferences around the U.S.
Neuroendocrine cancer is a rare cancer affecting only 125,000 patients in the United States, about five in 100,000 cases are diagnosed in a year. Neuroendocrine cancer is frequently misdiagnosed as common illnesses such as IBS, Chron’s, asthma and even the effects of menopause. It has the unfortunate legacy of originally being known as a benign “cancer-like” disease because it tends to be slow growing. Patients can go months, or even
Living with cancer can seem like an overwhelming prospect, but there are many organizations providing services that strive to make your journey easier. Minnesota Specific Resources Cleaning Up for Cancer If you are located in the seven county Metro of Minneapolis-St. Paul, this organization can help. They are supported entirely by corporate and private donations along with grants, currently allowing two cleanings per patient. Pathways Minneapolis Pathways’ mission is to
Living with neuroendocrine cancer Tips for healthy living and well-being with neuroendocrine and carcinoid cancer. Injection sites for short-acting octreotide If you need a bump of short-acting octreotide, outside of your normal Sandostatin LAR shot, this page shows a handy chart to make it easier to rotate your injection sites. Medical ID Bracelets Looking for information about what carcinoid and neuroendocrine (NET) cancer patients should put on their medical ID