advocacy

Carcinoid Syndrome Impact Survey
advocacy

We are excited to participate in the Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patient lives, while also exploring physicians’ approaches to treating the disease. This survey is groundbreaking in that it brings together the collective efforts of leading national and regional patient advocacy groups: Carcinoid Cancer Foundation (CCF) Neuroendocrine Cancer Awareness Network (NCAN) Neuroendocrine Tumor Research Foundation (NETRF) The Healing

NET Cancer Day Awareness PSA
advocacy

Trey Anastasio, singer/songwriter and brother of a neuroendocrine cancer patient who succumbed to the disease six years ago, made this video to help raise awareness for rare Neuroendocrine Cancers. NET Cancer Day is November 10th. Please share and help spread information about this incurable cancer.    

Petition: Protest the high cost of cancer drugs to patients
advocacy

Drugs for cancer care have become astronomically high, forcing many patients to do without. While the cost of cancer medications is increasing at an alarming rate, overall household incomes are down about 8% from a decade ago. Even patients with health insurance are seeing 20-25% out of pocket expenses for their care. This has to stop. Please consider signing this petition, which will be sent to the, Secretary of Health and