We are pleased to announce that Governor Dayton has proclaimed November 10, 2015 as NET Cancer Day in the state of Minnesota. This is the fourth year that he has offered his support in raising awareness for rare neuroendocrine cancers. The proclamation reads as follows: State of Minnesota PROCLAMATION Whereas: Neuroendocrine tumors (NETS) often develop into cancer and, if left untreated, can result in serious illness and death; and Whereas:
New results from the NETTER-1 study that compared Sandostatin LAR 60mg versus treatment with the novel peptide receptor radionuclide therapy (PRRT) Lutathera have been made available. These findings, released at the 2015 European Cancer Congress, show that for patients living with unresectable mid-gut neuroendocrine cancers that PRRT provided a longer progression free survival than with just long-acting somastatin analogues alone. Read more about the findings of this study.
The Carcinoid Cancer Foundation is pleased to announce that a new unique tool for carcinoid/NETs patients and their caregivers is now available! The Carcinoid NETs self-care tool, powered by Health Storylines™ allows you to track your mood, symptoms, and more, on the same timeline as your treatment. The Carcinoid NETs app makes sure you have an accurate, shareable record of your experience between physician visits, and helps you and your
Led by nationally renowned NET cancer physician specialists, this program will help patients be their own advocates and flow current data and information to the medical community. The topics covered during the conference are critical to the diagnosis, treatment and overall welfare of NET patients. Plenty of Q & A time is provided. The $25 registration fee includes a full day of world class presentations, continental breakfast, lunch and coffee breaks. Click here
We have a few patients in our group that have strong connections with carcinoid in their family. A new study at NIH has opened and we strongly encourage those affected to look into this. I have cut and paste an email that we received from Jenny Pettit about this study: Greetings, Myself and my Aunt (deceased) have been diagnosed with Familial Midgut Carcinoid/NETS. As I feel it is curse (due
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