neuroendocrine cancer

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Northwoods NETS supports a high quality of life for neuroendocrine cancer survivors and caregivers  through its website, education and support sessions, awareness and advocacy activities. It is through your generous contributions that we are able to continue this life affirming work. Northwoods NETS is a 501(c)(3) nonprofit organization incorporated in the state of Minnesota. All contributions to Northwoods NETS are tax-deductible to the extent allowed by law. We thank you for your support.

Part Eight: Round Two - Dancing with Lu-177 | PRRT & Me

Woah! I wrote a few weeks ago and I thought I’d have plenty of time to blog before I went to Basel for round two and the time slipped away. I am already done with round two. My treatment date was less than six days ago and I am back home in the United States. I am going to detail out some pre-trip items before I launch into the actual treatment.

Why did Steve Jobs die?

by John McDougall, MD Steve Jobs gave tacit permission and encouragement for me to write this newsletter article about the medical and nutritional aspects of his life when he commissioned his biographer to tell a true account. “I wanted my kids to know about me…” “Also, when I got sick, I realized other people would write about me if I died, and they wouldn’t know anything. They’d get it all

PRRT offers longer progression free survival

New results from the NETTER-1 study that compared Sandostatin LAR 60mg versus treatment with the novel peptide receptor radionuclide therapy (PRRT) Lutathera have been made available. These findings, released at the 2015 European Cancer Congress, show that for patients living with unresectable mid-gut neuroendocrine cancers that PRRT provided a longer progression free survival than with just long-acting somastatin analogues alone. Read more about the findings of this study.

Keeping track of your health just got easier!

The Carcinoid Cancer Foundation is pleased to announce that a new unique tool for carcinoid/NETs patients and their caregivers is now available! The Carcinoid NETs self-care tool, powered by Health Storylines™ allows you to track your mood, symptoms, and more, on the same timeline as your treatment. The Carcinoid NETs app makes sure you have an accurate, shareable record of your experience between physician visits, and helps you and your